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  1. #11
    joji's Avatar
    joji is offline Member
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    Yep, suspension sounds like the best option for you right now.

    If you need anything, or would like a visit from me and my little terrors, let me know - I'm happy to come and visit one day!

    Hang in there. Are there any other medical options they can try?
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  2. #12
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    hiya... havent been in for ages and very sad to read your post... my ex husband has UC and so I do understand some of what your DH is feeling and how frustrating it can be - not to 'excuse' his behaviour (and not that that was anything to do with why my ex and I divorced) but it is a very difficult condition to relate to... I have also sent you a pm hun, something you might have heard of that was suggested to him xx
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  3. #13
    penny78 is offline New Member
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    Hi, i couldnt read your post and not reply..... I also have UC and have been exactly where you are now and i know how terrible it is when your entire life revolves around UC. I was so unwell i ended up spending a couple of weeks in hospital which was so hard with an 8 mth old baby at the time BUT i had absolutly no choice as i was told i was on the verge of having my entire colon removed to save my life. I would totally recommend putting your studies on hold for now and focusing your strength on getting through each day....I would love to chat with you more if your interested, i am in Sydney and i see a fabulous specialist who has changed my life!! I am on a range of things to manage my UC but i think the two life savers have been Imuran (an immune suppressant) and Salofalk Enemas 4g. My heart goes out to you as i know how crappy life is when UC is out of control.. Take care Penny
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  4. #14
    ge0rge is offline Member
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    Thanks Penny

    All I want to do is cry - I am not a person that cries, so for me, its a bad place. I never admit defeat.

    I was on 6MP (which is the same as Imuran, but breaks down differently) and have reacted badly to that, so I have a feeling that I won't be allowed back on the 6MP. I am hoping to go on to Infliximab - but I fired by Gastro on Friday, after he yelled at me and then at my 3 year old son. After we had to wait 90 minutes (after they called me to come on 1 hour early) my son was getting restless, and making noise (as kids do) and when I pressed him about what was next, he yelled at me for 'interrupting his thought process', and then DS started to get the humps and he yelled ' if you keep this up, you will have to leave' - at a 3 year old. WTF?

    So, I have got a new GI, I have an appointment on 8/3, so about 4 weeks away, and hopefully he can help me more than this useless twat has.

    S
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  5. #15
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    Oh my God - I have just read this thread in its entirety only to come to your last post Ge0rge about your doctor - what a complete w@nker!! I mean really some doctors simply should not be practising medicine if they have no blinking people skills!

    I just wanted to send you some hugs and know that I am thinking of you - I think deferring is definitely the right thing for you at the moment - you obviously have so much else going on (don't get me started on husbands though - man what is it with them??? Harden up Princesses, the whole blinking lot of you!)

    After everything you have been through to have your family, this is just not fair...

    Good luck with the new specialist - I hope he is far more supportive than your current one.

    All the best Ge0rge xxx
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  6. #16
    daysea's Avatar
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    Wow George what a wan%$r of a dr When you have a chronic illness you need a supportive and understanding dr not someone like that. I really hope your new dr is what a specialist is supposed to be and has some better people skills then this last idiot.

    Sometimes you gotta go through a few to find the perfect one for you thats for sure.

    Good luck

    Kim

    Quote Originally Posted by ge0rge View Post
    Thanks Penny

    - but I fired by Gastro on Friday, after he yelled at me and then at my 3 year old son. After we had to wait 90 minutes (after they called me to come on 1 hour early) my son was getting restless, and making noise (as kids do) and when I pressed him about what was next, he yelled at me for 'interrupting his thought process', and then DS started to get the humps and he yelled ' if you keep this up, you will have to leave' - at a 3 year old. WTF?

    So, I have got a new GI, I have an appointment on 8/3, so about 4 weeks away, and hopefully he can help me more than this useless twat has.

    S
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  7. #17
    ge0rge is offline Member
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    Thanks Lou and Daysea - I spoke to my GP today, and he agrees, that is no way to talk to anybody, regardless of whats going on.

    I will just have to wait to for the new specialist, and see what happens.
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    There is no such thing as can't,

    only varying degrees of 'I don't want too'




    I really should be doing uni work..........

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